Joel was admitted yesterday, because his line was acting funny and his antibiotic did not go through like it should. Cultures were started just to make sure nothing had leaked through and wasn't growing and sure enough as we were getting discharged this morning, they got a call that he had a yeast infection. So they took the discharge papers away :( and said we are here through the weekend. They pulled the line and added peripheal IV. and started Diflucan for the Yeast infection and continued Cipro.
He had his Small bowel series and we are anxiously awaiting results of the length and whether he would qualify for any procedures to help lengthen the bowel. I heard little bit of preliminary treatment plan from the nurse coordinator and she said that they have had patient's with less small intestine than Joel and have them off of TPN..
I'm suppose to meet with Dr. Mercer tomoorow at 9:30 and should have more details to post tomorrow. WE are holding up, leaning on the Lord and believing in hope and a miracle for our little guy. They will be teaching us new techniques for cleaning(line maintenance)and a whole new thought process on how to deal with cutting down on his infections. We will be starting feeding therapy, they are waiting to receive the paper authorization instead of Just verbal.
Thank you everyone for your prayers, thoughts and encouragement...
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