Thursday, August 28, 2008

Good News !!!!

Well we had our Follow up appointments last week and good news for our little man.
He had his MRI and we are still waiting for results on that and should receive them next week. As far as his kidney reflux his urologist said that its still pretty severe but it has improved. They will do surgery on that when he is about 18-24 months. What they will do is re-implant ureter into the bladder and bypass the kidney so its still functional but yet it will take care of the reflux. Modern medicine is amazing ! But our Lord is greater, they think that there may be the possibility of another kidney;it may be small and if it is it would not show up on an ultrasound so they would like to do some type of scan in the future for that. They said that the one kidney he has is larger than should be and that's why they are suspecting maybe there may be a second one.

Our GI docs are very impressed with his progress and they want to get him to a point to transition off of the TPN (liquid IV nutrition) and they think he is getting close to do that. I told Dr Byrne that if we got the line out of his chest that
I could do tube feedings forever and he looked at us and told us he didn't think we were going to have to do that. Praise the Lord! He is so good!

Joel physicaly is on the move, no leaving him alone for a minute. He's crawling from one end of the house to the other. Pulling himself up on everything and letting go and standing alone for about 7 seconds.

The greatest miracle of all amongst everything else is he has started drinking a bottle!!!! Yes, sucking and swallowing they said that he may never do that since he didn't learn it at birth but he continues to amaze us. It's wonderful to finally feed my son as naturally as I can at this point and it brings tears to my eyes everytime I see him sucking his bottle. He sucked 17 cc's the other night. Now mind you I do have to bribe him by watching cartoons especially CURIOUS GEORGE but whatever works. Hehe

Thank you for all the prayers and will try to keep you all updated more frequently

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